Food! December 28

Today Matt was upgraded to eat “real” food that doesn’t look like baby food! He sent me home tonight with a wishlist of foods. I think this change will definitely help his spirits and healing, as eating baby-like food has been extremely discouraging for him. After our scare — and fix — on Christmas Eve we have noticed improvements in …

Random Act of Kindness: December 26

I know I sound like a broken record, but this month has been a whirlwind of ups and downs; when some days seem impossible, I am constantly reminded of all the good. This morning the boys and I were woken up by cleaners. Our friend had paid for extra cleanings so I wouldn’t have to worry about keeping the house …

Ambulanced to Iowa City: Christmas Eve

Matt experienced a very serious and potentially fatal complication yesterday. But thank you to my sister, Hong, and cousin, Liyen and Joshua, who noticed, doctors intervened and he was immediately ambulanced to Iowa City. CSF leaks are no joke — especially after a major brain surgery like Matt’s. The neurosurgeons wanted to get him into another complex surgery as soon …

Our First Family Picture: December 22

Matt is ready to share. Our first family photo post surgery. This past month has been a whirlwind, but I am thankful for these moments — good and bad.

Milestones: December 22

I wish I could say Matt’s recovery is all rainbows and sunshine, but it’s far from it. Yes, we try to celebrate the milestones but there is a ton of struggle and frustration to get there — and Matt’s mom and I are getting all of the jabs. We know it’s not him, but it hasn’t been easy. We’ve even …

Rehab Day 1: December 21

Matt finished his first day at rehab today. Although it will be nice to see him continue to make progress to get better, it absolutely breaks my heart to see him struggle. I can see the frustration and anger in his face because he needs help doing the simplest of tasks. It’s hard to see such a physically strong person …

Off to Rehab: December 20

We’re getting ready to head back to Des Moines! We are just waiting for the ambulance to transport Matt to Mercy. After a day of no answers the social worker and I decided to tag team efforts by calling the insurance company. 10 minutes after I gave the insurance people a sob story about how the boys want to be …

Ups & Downs: December 20

There’ve been so many ups and downs to Matt’s recovery. Although he is showing signs of progress, he had some difficulties last night that cause him to have an emergency evaluation. His amazing nurse stayed outside the door all night while I slept with one eye open next to him. Brain surgery of his extent is a very serious thing. …

Perspective: December 18

The last 3 weeks have been the hardest of our lives. It’s a true test of our marriage and each other’s strength. Matt said to me today (as clear as he is able to), “This sucks. I hate it here. But it puts things into perspective.” And it absolutely does. I can’t help but think about all the stupid things …

Progress: December 17

Matt is continuing to show great progress. The physical therapist got him to stand, but he’s still not ready to walk as his brain suffered severe trauma from the removal of the tumor — which he did get a picture of! Dr. S kept his promise and delivered the pictures this morning. Matt’s reaction when seeing the picture: “WHOA.” His …